Wednesday, July 11, 2012

"None so blind." AIDS and America


I don’t often have visceral reactions to book. Sure they can make me laugh, make me cry, but until I read  And the band played on: Politics, people and the AIDS crisis, I’ve never thrown up in my mouth a little. And it wasn’t the revelation of various more extreme gay sexual practices (which oddly I seem to have been largely aware of) or the descriptions of the diseases that suddenly were infecting young men with horrific results, nor the horrid hatred that was revealed against gays. No, it was the reaction of a bathhouse owner to the threat of closure.  For those of you not in the know, the bathhouses were places where gay men would have multiple anonymous partners, and as such were one of the hubs of the American AIDS crisis. One of the owners turned to a doctor after a meeting and said, “What do you care? We make money when they come here, you make money when they get sick.” Another said, “There is no evidence that AIDS is a sexually transmitted disease.” Togther, they made the bile, or something, rise to the back of my throat.

The AIDS epidemic, as author Randy Shilts, says, didn’t happen to America, it was allowed to happen. Between “not inflaming the homophobics while not offending the gays”, government indifference, from all levels and all parties, scientists arguing over funding and credit rather than doing research, and gay activists more worried over their civil right to anonymous multiple partners than the lives of others, AIDS got a grip in America in a way that could easily have been, if not avoided, certainly minimised. It’s a book that will make you angry and saddened.

At the same time, you meet men and women, gay and straight, who were not afraid to tell the truth, to take on the problems of trying to deal with a disease that was either being ignored or denied, working with little or no support, inadequate or no funds, watching friends, loved ones, patients dying around them, fighting in the political, social, economic, and scientific arenas. Some of them ended up with the disease themselves but kept going. Some of the good guys are unexpected. For example C Everett Koop, a Reagan-appointed fundamentalist Christian, was the Surgeon General who treated AIDS as a public health issue, rather than a moral or social issue. It was late but it was something.

Some of the people are inspiring, some infuriating, some touching, some more ambivalent. The infamous Patient Zero, Gaetan Dugas, deliberately was having sex without telling his partners he had the disease or taking any precautions. And yet, while he angers with his actions, he comes across sometimes as a tragic figure, tormented by chance and his personal demons. Although Shilts has been accused of creating a gay bogeyman in Dugas, I thought his portrayal was compassionate without losing sight of Dugas’s role.

The book covers the year 1980 to 1985 in detail, culminating in Rock Hudson’s announcement of his disease, when AIDS finally became part of the public discussion. Apart from the social and political story, it is also fascinating to read how a new disease is recognised, found, defined and isolated. And for a book full of science, technical terms, and government departments and acronyms, it’s quite the page turner. Its believed AIDS arrived in the US in 1976 with the Bicentennial celebrations. Before then it was already in Africa and France. Only in America, because of how it first presented, did it become known as the gay disease, with disasterous consequences worldwide. Shilts was the only journalist to follow the story from the beginning, and was uniquely placed to write this book. We should be grateful he did.

There is still no cure for AIDS, only treatments. As more young gay men, as I am told, are thinking AIDS is no longer a threat, this book may still be timely reading.

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